Friday, August 22, 2014

From Walker to Bed - ridden

When I began using a walker I got me a candy apple red one just like my van.  For a walker it was pretty.  Boy, it made me feel so much more secure than my cane.  Standing balanced at my car door and having to give up my walker, balance, push the button to open the big sliding door.  Balance, fold my walker, lift it up, keeping balanced and slide it in front the back seat.  Hold on to the van, push the button to close it and turn around carefully to get in the van.  I LOVE MY VAN!  I still do.  

It is interesting how I got in the van.  Since my left leg has always been the strongest, I balance on my right leg, bring my left up on the foot step that Barry & Stephen installed for me and swing my behind around to the seat.  Once there I was still able to bring both legs in.  When I drove I had to drive with my left foot for both the brake and the accelerator.  Most people use their right for both.  Thank goodness that it worked well for me.  I was still a safe driver and still could go wherever I wanted.  One day I was at Safeway shopping.  When I was done, I put the bag of groceries on my walker and headed out.  By this time walking with a walker was becoming very slow and very difficult.  Picking up my right leg to move it felt like a hundred pound weight.  It was tiring.  As I was slowly walking to my van and I kid you not, the wonderful woman who looked in her 70's asked ME if she could help me.  Wow, the tables had certainly turned in my life.

One thing nice about the walker, besides the security, was that I could put anything on it that I would normally carry.  It was great working, slowly but surely, around the house.  Also when I went out with friends or anywhere with Barry, I walked so slow and any distance was beginning to be so hard and I. Would be so tired by the time I got to our destination.  So the answer to that was, I SAT ON THE WALKER and whoever I was with pushed me!  It made life so much easier leaving the house.  Barry LOVED it a little to much.  He would run it or certainly walk really fast and then swing me around corners.  I'd be laughing!!  People would look at us!  It's so good that I never bad any pride to worry about what I looked like.  That's why going to the cane and then to the walker made no difference to me.  Comfort, comfort, comfort, security and fun is my motto in life.

At home it began getting harder and harder to walk even with my walker.  I found myself sitting in my walker watching TV all day.  Boy, that was a hard switch.  I NEVER watched TV especially during the day.  But what could I do?  My girlfriend, Debbie bean coming over and we would crochet together,  I actually made each of my four kids an oversized, thick lap blankets!  I was so pleased since my right had begun to curl, (spasm permanently.  It was interesting holding the crochet hook but by George, I did it!!  Who is George?

Then along cane my baby girl!  My Great Niece, Meilani!  At three months old, I began taking care of her for two hours, twice a week.  People were in awe of how I could it with my right weak and my right curled.  When you really want to do something, you usually find a way.


Do you have any questions for me?  I will happy to answer.  No question is too small or too big.  Any question about me?  MS? Me & MS?  My life?  Feel free.  I am here.

Sorry this not letting me go back and proof read this and correct this .  So I will just post it.  I apologize for all of the typos and missing words. I think faster than I type,

2 comments:

  1. Hi! I am new to blogging, and I also have MS, and have had PPMS for 17 years. I have been in an electric wheelchair for about 7 or 8 years now. I am up in it for about 8 hours a day, then in bed the rest of the time. I have only read this post of yours so far, are you completely bed-ridden now? I am going to read the rest of your blogs, so I'm not sure I have read anywhere that said you were completely bed-ridden?? I would love to talk to you some day, if you would like you could read some of my blog, and maybe we could compare notes to see if we have had any similar experiences. Glad to meet you, Amy

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    1. I am sorry Amy for never responding to your reply. I was in bed ridden on this blog of became bedridden shortly there after. Oh wow I didn’t realize that I had written and sent 2016. Yes I have now been bed ridden for 10 or 11 years. I’m beginning to put my blog just on my Facebook page because I don’t do Facebook but I don’t want to Shut it down for family purposes. So I will use my Facebook to bring that up to date and then I will continue from 2021 W. pictures on my blog to demonstrate what they are working on and how hard it is and how we do it.. how can I find your blog and are you still Writing it? Again, I apologize profusely.

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